Registered Charity No. 294354 Local Branch Patron : Dr. Dorothy Anderson	MOTOR NEURONE DISEASE ASSOCIATION - NORTH AND EAST HERTFORDSHIRE BRANCH
	STOP PRESS !! - LATEST NEWS YOUR CHANCE TO QUIZ THE EXPERTS Why does it take so long to bring any potential treatment for MND to a clinical trial? Can you tell me about lithium and the plans for clinical trials? Why is there a sudden interest? How do I get involved in a clinical trial? These are just some of the questions that we know that many of you would like answers to. And now is your chance to ask a panel of international Motor Neurone Disease (MND) experts any questions you have about MND research. On Saturday 1 November 2008, in conjunction with the International Alliance of ALS/MND Associations, the MND Association is hosting a two-hour ‘Ask the Experts’ session for people living with MND, their carers, and Branch and Group members. Your chance This event is your chance to ask leading international experts in MND any questions that you may have related to current research and the clinical management of MND. The session will include an overview presentation, followed by informal, round-the-table Q&A discussions. It will then finish with a more formal panel Q&A discussion. Who are the experts? We are thrilled to say that two eminent neurologists have confirmed that they will be sitting on the expert panel. They are Professor Nigel Leigh of King’s College London and Professor Peter Andersen of Umea University in Sweden. Some of you may know or have heard of Professor Leigh. He has been the Director of the King’s Care Centre for many years and has been instrumental in organising many clinical trials for MND in the UK Professor Andersen is a leading international expert on research into the rare, inherited forms of MND. His research findings in Scandinavia have made a huge contribution to our understanding of the SOD1 form of MND across the world. Dr Brian Dickie, Director of Research Development at the Association, will be kicking off the event with an overview presentation. He says: “Ask the Experts is a fantastic opportunity to meet those working at the cutting edge of medical research and put your burning questions about the disease to those most qualified to give the answers.” Free event This free event is open to people living with and affected by MND. It is a really exciting occasion because the last time the International Alliance held an Ask the Experts session in Great Britain was back in 1997 in Glasgow. Ask the Experts 2008 Where: Hilton Birmingham Metropole, National Exhibition Centre, Birmingham When: Saturday 1 November 2008 2.00pm to 4.00pm. You can reserve your free place at ‘Ask the Experts’ by registering online at: www.mndassociation.org/conferences. Or you can book your place by ringing the Conference Team on 01604 611845 or by emailing the team at: conference@mndassociation.org Or you can upload a postal form by clicking here Application form (PDF format) Places are limited so register now.
Monthly Meetings - change of permanent venue Please note that we have permenantly changed the venue of our monthly meetings to the Bedwell Community Centre, Bedwell Crescent, Stevenage, SG1 1NA (see map below). We hold our monthly meetings on the last Wednesday of each month (except for December), and they start at 7.30 p.m. Everyone is warmly invited to come along.
Del’s Match There is going to be a charity football match between the Non League All Stars and a Professional/Star Studded Celebrity Dream Team on Saturday 10th May at Edgware FC’s White Lion Ground, HighStreet, Edgware. Kickoff will be at 3 pm. A fundraising event for Del Deanus 34, who played youth team for Tottenham Hotspur and is currently co-Manager of Ryman Division 1 North Side Edgware Town FC. Football Stars including former Tottenham Hotspur and Queens Park Rangers legend Les Ferdinand and Ex-Chelsea hero Frank Sinclair who will be joining music and film celebrities to play against a top notch non-league side. Tickets are £10 for adults and £5 for under 16s For more information about this very special day, you can visit www.deslmatch.co.uk or telephone Jerry Lyons on 07846 839944.
Motor Neurone Disease Association launch new information service 01 May 2007
The Motor Neurone Disease Association has announced the launch of its new information and advice service, MND Connect, which will start on 1st May 2007. MND Connect is more than just a helpline. MND Connect offers people access to a quick route to get advice, practical and emotional support and directing to other services and agencies. The service is for people living with MND, carers, family members, Health and Social Care Professionals and Association staff and volunteers who directly support people with MND. Hearing a diagnosis of Motor Neurone Disease is always distressing. Living with it can be even harder. It can throw up questions such as, what benefits am I entitled to? How do I keep my symptoms under control? What services and support is available? MND Connect can answer all these questions. It is made up of a team of experienced staff and volunteers who work closely with our local and regional services. The service receives over 1,000 calls a month on wide variety of enquiries, and many people will be in touch on more than one occasion, seeking continued support or information as their journey evolves. For many, it becomes a regular point of contact and reassurance. The service is available Monday – Friday from 9.00 am to 10.30 pm. To contact MND Connect call 08457 626262 or email : mndconnect@mndassociation.org
Link to National Office Web Site www.mndassociation.org Contact us e-mail us.
This document maintained by Jon Ward. Material Copyright © 2000	Home Page Branch Information Recent Events Stop Press !! Meetings & Coming Events Newsletter Branch Committee Information Fundraising Information Volunteering Information www.mndassociation.org

Registered Charity No. 294354

Local Branch Patron :
Dr. Dorothy Anderson

MOTOR NEURONE DISEASE ASSOCIATION
-
NORTH AND EAST HERTFORDSHIRE BRANCH

STOP PRESS !! - LATEST NEWS

YOUR CHANCE TO QUIZ THE EXPERTS

Why does it take so long to bring any potential treatment for MND to a clinical trial?

Can you tell me about lithium and the plans for clinical trials? Why is there a sudden interest?

How do I get involved in a clinical trial?

These are just some of the questions that we know that many of you would like answers to. And now is your chance to ask a panel of international Motor Neurone Disease (MND) experts any questions you have about MND research.

On Saturday 1 November 2008, in conjunction with the International Alliance of ALS/MND Associations, the MND Association is hosting a two-hour ‘Ask the Experts’ session for people living with MND, their carers, and Branch and Group members.

Your chance

This event is your chance to ask leading international experts in MND any questions that you may have related to current research and the clinical management of MND. The session will include an overview presentation, followed by informal, round-the-table Q&A discussions. It will then finish with a more formal panel Q&A discussion.

Who are the experts?

We are thrilled to say that two eminent neurologists have confirmed that they will be sitting on the expert panel. They are Professor Nigel Leigh of King’s College London and Professor Peter Andersen of Umea University in Sweden.

Some of you may know or have heard of Professor Leigh. He has been the Director of the King’s Care Centre for many years and has been instrumental in organising many clinical trials for MND in the UK Professor Andersen is a leading international expert on research into the rare, inherited forms of MND. His research findings in Scandinavia have made a huge contribution to our understanding of the SOD1 form of MND across the world.

Dr Brian Dickie, Director of Research Development at the Association, will be kicking off the event with an overview presentation. He says: “Ask the Experts is a fantastic opportunity to meet those working at the cutting edge of medical research and put your burning questions about the disease to those most qualified to give the answers.”

Free event

This free event is open to people living with and affected by MND. It is a really exciting occasion because the last time the International Alliance held an Ask the Experts session in Great Britain was back in 1997 in Glasgow.

Ask the Experts 2008

Where: Hilton Birmingham Metropole, National Exhibition Centre, Birmingham

When: Saturday 1 November 2008

2.00pm to 4.00pm.

You can reserve your free place at ‘Ask the Experts’ by registering online at:

www.mndassociation.org/conferences.

Or you can book your place by ringing the Conference Team on 01604 611845 or by emailing the team at: conference@mndassociation.org

Or you can upload a postal form by clicking here Application form (PDF format)

Places are limited so register now.

Monthly Meetings - change of permanent venue

Please note that we have permenantly changed the venue of our monthly meetings to the Bedwell Community Centre, Bedwell Crescent, Stevenage, SG1 1NA (see map below).

We hold our monthly meetings on the last Wednesday of each month (except for December), and they start at 7.30 p.m. Everyone is warmly invited to come along.

Del’s Match

There is going to be a charity football match between the Non League All Stars and a Professional/Star Studded Celebrity Dream Team on Saturday 10th May at Edgware FC’s White Lion Ground, HighStreet, Edgware. Kickoff will be at 3 pm. A fundraising event for Del Deanus 34, who played youth team for Tottenham Hotspur and is currently co-Manager of Ryman Division 1 North Side Edgware Town FC. Football Stars including former Tottenham Hotspur and Queens Park Rangers legend Les Ferdinand and Ex-Chelsea hero Frank Sinclair who will be joining music and film celebrities to play against a top notch non-league side.

Tickets are £10 for adults and £5 for under 16s

For more information about this very special day, you can visit www.deslmatch.co.uk or telephone Jerry Lyons on 07846 839944.

Motor Neurone Disease Association launch new information service 01 May 2007

The Motor Neurone Disease Association has announced the launch of its new information and advice service, MND Connect, which will start on 1st May 2007. MND Connect is more than just a helpline. MND Connect offers people access to a quick route to get advice, practical and emotional support and directing to other services and agencies. The service is for people living with MND, carers, family members, Health and Social Care Professionals and Association staff and volunteers who directly support people with MND. Hearing a diagnosis of Motor Neurone Disease is always distressing. Living with it can be even harder. It can throw up questions such as, what benefits am I entitled to? How do I keep my symptoms under control? What services and support is available? MND Connect can answer all these questions. It is made up of a team of experienced staff and volunteers who work closely with our local and regional services. The service receives over 1,000 calls a month on wide variety of enquiries, and many people will be in touch on more than one occasion, seeking continued support or information as their journey evolves. For many, it becomes a regular point of contact and reassurance. The service is available Monday – Friday from 9.00 am to 10.30 pm. To contact MND Connect call 08457 626262 or email : mndconnect@mndassociation.org

Link to National
Office Web Site
www.mndassociation.org

Contact us
e-mail us.

Home Page Branch Information Recent Events Stop Press !! Meetings & Coming Events Newsletter Branch Committee Information Fundraising Information Volunteering Information www.mndassociation.org

Registered Charity No. 294354

Local Branch Patron :Dr. Dorothy Anderson

YOUR CHANCE TO QUIZ THE EXPERTS

Local Branch Patron :
Dr. Dorothy Anderson